Alyona Baranoff

Uneven shoulders

Amanda Sheridan

Amber Renee

Anna Ulrikke Andersen 

Caterina Coser Di Pasquale

Chanchal Sarin

Emily Alta Hockaday

Gem Blackburd

Jeremy Bryant

Burning

Searing pain

Kelli J Gavin

Leanne Moden 

Mark Tulin

Congestion

Shortness of breath

Nikki Marrone

Pain

If I need to I will say that I experience chronic pain often, which limits my mobility. Typically if I go into depth about my condition or name, people don't understand it.

Nina Padolf

Lack of mobility

Paulina Trejo Mendez

Sometimes it's hard for me to talk about my illness with someone I don't know. I'm trying to get better at it. First, hardly anyone has heard of Still's Disease before. I might describe my illness in the terms of diseases they've heard of -- like if lupus and rheumatoid arthritis had a baby, it would be Still's Disease. If someone understands chronic illness, I like to use the dragon analogy. Every day I work as a dragon-slayer who battles my dragon, a rare illness known as Stills Disease, which causes inflammatory arthritis, fevers and systemic issues. My fight with this devastating illness turned into a chronic journey.

Phyllis Hemann

Inflammatory arthritis

Hidradenitis Suppurativa (HS) is an inflammatory condition where an overactive immune system contributes to inflammation below the surface of the skin which often need to be operated on.

Suzann Kundi

Lumps

Wayne Rapp

I tell them what my doctor said - it has overlapping symptoms of lupus, rheumatoid arthritis, and myositis. I tell them pain is irregular and unpredictable. A sudden burst of twitching in my calf muscle can start while I'm writing at my desk. My leg can suddenly feel weak, as if it will give out, while I'm crossing the street. 

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