Accessibility Survey
How important is participation in the arts for you or your charge?
Very important
What is the biggest barrier you face when it comes to attending an art event?
Transport to venue and/or parking.
What issues prevent you from taking part in arts activities?
Time is a big issue (I am a Head of Art in a Secondary School), but also price of submitting work, Location is another factor (if not local to me in Barcelona).
What three things might encourage you to take part in arts activities more often?
Free entry of work. Good communication from event staff (with transparency of terms). Publishing of my work.
What support is most important to you in your work as an artist?
Support with exhibiting/publishing my work.
What advice would you give to any arts organisation planning to develop activities and events for creative people like yourself?
Remember that not all artists have unlimited time and money to be involved, avoid any voting tactics (who's involved should be based on merit, not likes). Be open about fees etc.
What do you personally do to make art accessible to yourself?
I try to get involved in local art events and groups and not to feel guilty about spending time on my art.
Tell us about your day-to-day experience of the condition
The treatment I take can make me tired and the condition produces 'lumps' (like spots that won't burst) that can be painful and get infected.
How do you describe your condition to people who don’t know you?
Hidradenitis Suppurativa (HS) is an inflammatory condition where an overactive immune system contributes to inflammation below the surface of the skin which often need to be operated on.
What symptoms do you experience
What's the one thing you want people to know about your condition and/or work?
I want people to be intrigued and intellectually interact with my work and condition to create a continuous narrative to bring down misconceptions.